In 1997, at the Foundation, Dr. Lisbeth Quesada writes “The Rights of Children with Terminal phase illnesses”, which are immediately welcomed by the local UNICEF office. These rights are disseminated around the world and are published in different books, they are used as a base to fight for the rights of children and adolescents with these health conditions.

  • I have the right to be visualized and conceived as a legal subject, not as a property of my parents, physicians or society.
  • I have the right to be taken into account when there is the time to make decisions because I am one who is sick.
  • I have the right to cry.
  • I have the right of not be alone.
  • I have the right to have fantasies.
  • I have the right to play and behave as a teenager, even if I am a dying child.
  • I have the right to get my pain controlled since my first day of life.
  • I have the right to know the truth about my condition. And also I have the right to be given honest answers to my questions.
  • I have the right that my needs be satisfied in a holistic way.
  • I have the right of a dignified death surrounded by my loved ones and my most beloved objects.
  • If that is my wish, I have the right to die at home and not in a hospital.
  • I have the right to feel and express my fears.
  • I have the right to prepare my death.
  • I have the right to feel anger, rage and frustration for my disease.
  • I have the right to refuse to continue receiving treatment when there is no cure for my disease, but quality of life.
  • If that is my wish, I have the right to receive palliative care.
  • If that is my wish, I have the right to be sedated while I am facing death.
  • I have the right that my parents understand that although I love them very much, I will be born to a new life.